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Today is Rare Disease Day!!!! ๐Ÿ’› Itโ€™s hard to have a healthy ..

Today is Rare Disease Day!!!! ๐Ÿ’› Itโ€™s hard to have a healthy body image when your insides donโ€™t work properly, but Iโ€™m showing off my colors and scars anyway! ๐ŸŒˆ *Any $ helps immensely with medical bills While endometriosis itself isnโ€™t rare (1/10 people with a uterus have it), the way it manifested in my body is incredibly uncommon. DIE (deep infiltrating endo) of the urinary system is rare and is found in about 1%โ€“5.5% of all people with endometriosis. I had endo on BOTH ureters very early on, which is extremely uncommon and can lead to rapid bilateral renal failure, and needs lifelong monitoring Ureteral endo makes up 0.1%โ€“0.4% of genitourinary tract endometriosis. Ureters are the second most common site of the urinary tract affected by endometriosis with a ratio of bladder/ureter/kidney/urethral endometriosis of 40:5:1:1 I also have other rare diseases, such retroperitoneal fibrosis! You can check out my full list of โ€œproblemsโ€ on my Joint Talk With Jackie Series Stay strong!!!! ๐Ÿ’ช๐Ÿ’›

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